Predictable. Lupus, or SLE, is a terrible disease that killed two people in my life: my father and my piano teacher, who was a lifelong friend.
So, on Facebook (which is lame in so many ways, but is really my only means of constant, reliable contact with my family and friends when I am on the other side of the world) I am a ‘member’ of a group dedicated to finding a cure for SLE. Yesterday, on my FB homepage, I saw a message asking members of the SLE group to petition Congress for more research funding. They provided links on how to contact your senators and representatives. I was the first to post, and I said, “I disagree with governments funding research. Sorry, I won’t be calling.”
Holy cats, did the insults fly! I was told that I if someone I love is ever afflicted with lupus, I would have a different opinion. I was called selfish, droll, misinformed, uneducated and pretentious.
I then stated that two people very close to me died from lupus, and that the reason I want the government out of the funding of research, is because I want a cure to be found, not because I don’t want a cure to be found.
Well, then I was called self-centered, selfish, negative, heartless, uneducated (again) and delusional. It was also implied that I was lying about my father and friend dying of lupus.
One of the things I mentioned was that a cure was found for polio without a single nickle of government money. In fact, I mentioned it twice, and no one took notice. If these people are ‘average’ Americans, then I must conclude that the average American cannot understand how medical research can possibly be done absent government funding.
I have two questions:
- Is it true that the research that led to the polio vaccine was totally unfunded by government? I heard that somewhere, and I haven’t seen anything that refutes it.
2a) Should I have handled this differently? Other than not engaging these people at all, is there something I could have said that would have made at least some of them see my point of view?
2b) Is there an article on the economics of medical funding from a free market perspective? I found one, but it was in a scholarly journal, and it was way over my head.
One possible error I made was when one lady, who claimed to have a master’s degree in psychology, declared me to be “delusional.” My response would have been more suitable in the context of a chat room:
Nicole, if you have a master’s degree in psychology, and you declared me to be delusional based on one post on the internet, it means that either:
1) you are lying and don’t actually have a degree in psychology or…
2) psychology is an idiotic pseudo-science or…
3) you are a shit psychologist
That thread petered out. Here is a link to another on the same FB page, asking if we (the members of the group) contacted our congressmen. On this one I have also made a comment that, I am sure, will be met with the same attacks as the previous one.